Saoírse, who passed away from cancer in March 2024, appeared on the Late Late Toy Show in 2020 and shared her fight against cancer.
Ms Ruane said shildren like Saoírse would have “looked up to the likes of DJ Carey at one point years ago”.
On Monday, disgraced former hurling star Carey was jailed for five-and-a-half years for conning people out of nearly €400,000 in a fake cancer scam.
An infamous photo of Carey that has been circulated widely online shows him posing with a phone charger up his nose while pretending to have cancer.
“I just find that photo so triggering, because our personal experience was that here she needed to be fed that way,” Ms Ruane told RTÉ’s Liveline.
“And I remember countless conversations with the consultant about what way we’d go about it, because, as DJ Carey showed there, with a charger for a phone, that is the nasogastric version of how people have to be fed when they’re too ill, or they’re too weak or they’re losing weight rapidly.”
The Galway woman described how her daughter had struggled to keep food down but wished not to be fitted with the tube for fear she would be viewed as “different”.
“She didn’t want her friends in school to look at her any differently.
“So the decision was made at that time that we would do the gastrostomy instead, which went through the tummy, so it was like a peg feed.
“But you see this photo, and you think, My God, how low do you stoop?”
Carey had pretended for years he was unwell, tricking 22 friends and acquaintances into paying for his supposed treatment.
He blamed his “desperate” financial circumstances for the fraud.
Roseanna and her husband Ollie had fundraised money while Saoírse was unwell and said she is appalled by the fraud Carey committed.
“When we fundraised for Saoírse it was Covid, thinking people are going through such a difficult time, and to think that they put their hands in their pocket, that that generosity was there in a country and further afield, to want to help someone in despair,” she said.
“That is genuine, and that is fantastic to see that support, but to do that in a fraudulent way, I don’t think five and a half years or 15 and a half years [is enough].
“It will never forgive that,” she added.
Judge Martin Nolan branded Carey’s behaviour “reprehensible” as he handed down his sentence on Monday.
Ms Ruane said: “[Carey] has no idea, because he hasn’t been through cancer himself, of how difficult, how traumatising, the effects that it leaves, that there are so many people out there that have fought it, that are fighting it, but also it is so insulting, because so many of us have lost special people to it”.
